2447 Dream Mom has a dream
Dream Mom has a severly disabled son. When I first read her blog and saw a photo of him sitting up in a wagon, I thought it was current. But it was a reflection on a past event, when he had learned to pull himself upright in his wagon while they were out for a walk--a huge accomplishment for which she lavished praise. Now he is bedridden and frequently hospitalized. She has lost her home, her job, her savings, her retirement--and cares for Dear Son, as she calls him in her blog. However, she writes an even more touching story here, "There's no place like home," about a little boy, much healthier than hers, whose mother gave him up. But life could be easier for all parents of disabled children, she writes, if just these things were available:- "We need to have daycare facilities that take all children, regardless of their disabilities. While legally, they can not discriminate, they often won’t take them. They don’t make money on kids like that, even if they had employees trained to care for them. Daycare for disabled children, is practically non-existant. We need to do this so these parents can work and take good care of their children and themselves.
- We need more Respite care so when their parents are tired, they get a break.
- We need to require hospitals or medical centers that have specialty physicians who care for these children,
- and have suitable rest rooms so we can change them on a bed instead of on the bathroom floors.
- We need to have assistants located in the parking lots of our medical centers, so they can help us lift the children in/out of the car, making it easier, instead of paying people to say hello to us when we come for an outpatient visit.
- We need to allow parents to save tax free in a 401(k) for their disabled children’s retirement, in addition to their own retirement, so the children/adults will be less dependent on Medicaid, Medicare and other government programs.
- We also need to provide for medical withdrawals, based on need, for these 401(k) plans, in case of catastrophic medical bills. We could do this very easily, by using our current Social Security definitions of a disability, as a requirement for the new 401(k)."
I've come across many blogs written by parents of disabled children, who describe the challenges, heartaches, and victories of their staggering tasks. If blogging has done nothing else, it has certainly brought these exhausted and caring parents out of the closet so the rest of us can see what they deal with daily.




