Saturday, May 16, 2020

Hydroxychloroquine and Remdesivir

Hydroxychloroquine has been politicized. Why? Trump recommended it as a possible effective treatment for Covid19. Those infected with TDS went crazy. Likewise, Remdesivir isn't having the same battle. Why? Hydroxychloroquine has been on the market for decades, for other diseases. Remdesivir hasn't been approved for anything but has had some good early data. Some people say "follow the money." Hydroxychloroquine is cheap and available. Remdesivir is expensive, not approved safe yet, no generics. Democrats, you know those guys who hate capitalism and mega-rich people, seem to be backing the one that will cost us a lot of money--Remdesivir.

Doctors who had been using Hydroxychloroquine are being told not to. Hmmm. Interview by Sharyl Attkisson with Dr. William O'Neill investigating both drugs. He has used Hydroxychloroquine on many and found it effective and believes the politicization has been harmful. He's looked at Remdesivir studies--it doesn't reduce mortality, but may decrease days in hospital. So a reduction in mortality vs. a reduction of days in the hospital? There are 6 studies on going for Hydroxychloroquine. There may be other drugs on the horizon. It may turn out it's a cocktail of drugs, not one drug. Hold your powder, folks. The media are not our friends in this search. It sometimes takes 10-15 years to fully understand a new disease.

https://sharylattkisson.com/2020/05/hydroxychloroquine-politicizing-medicine-podcast/

The censored voice of Aaron Ginn

Social media giants like YouTube, Google, Facebook and Twitter have attempted to silence or "correct fake news" about the virus and pandemic. Today's Wall St. Journal points out that some of those canaries in the coal mine were correct and the censors were just wrong. What if in 10 theories, 9 are half-baked, but 1 is just perfect. We know the media, both main stream and social, will attempt to destroy all 10. But isn't that what theories are for?

"Aaron Ginn’s story is a cautionary tale that even well-intended censorship can overreach, suppressing the search for truth. Mr. Ginn, 32, is the Silicon Valley technologist who posted an essay on March 20 titled “Evidence over hysteria—COVID-19” on the Medium website. Citing academic research and government data, Mr. Ginn argued that public-health experts were focusing too much on “flattening the curve . . . while ignoring the economic shock to our system” of shuttering businesses and schools and ordering Americans to stay home.

“When 13% of Americans believe they are currently infected with COVID-19 (mathematically impossible),” he wrote, “full-on panic is blocking our ability to think clearly and determine how to deploy our resources to stop this virus.” The message was well-timed—the day he posted it, Gov. Andrew Cuomo ordered “nonessential” New York businesses to close.

Mr. Ginn’s essay drew 2.6 million page views in 24 hours—and a barrage of liberal criticism. Carl T. Bergstrom, a University of Washington biologist, called it “Shakespeare run through google translate into Japanese, then translated back to English by someone who’d never heard of Shakespeare.” Then Medium took it down, saying it violated rules under a “risk analysis framework we use for ‘Controversial, Suspect and Extreme content.’ ”

But Ginn had been in Wuhan before most of us had ever heard of it. He also had some internal warnings about censorship--his grandparents had fled Communist China 50 years ago, he knew the Chinese language and (gasp) he had been a Christian missionary. Not only did he believe in the free expression of ideas (something Democrats have lost), but he knew the Chinese data was not to be trusted.

Now millions of us have taken our heads out of the sand (or other dark places) and are seeing the wisdom in his warnings--although it may be too late for the businesses that have been destroyed all in the race to ruin the Trump economy.

"Some belittle him [Ginn] as an “armchair epidemiologist.” He retorts that “facts and data are independent of your credentials..” Knowledge of the virus is evolving, and “we should always take in new evidence and judge it, and figure out what’s the sort of best policy prescription. A lot of things that we originally thought we were right on were wrong.” Take the “6-foot rule” for maintaining personal social distancing, which Mr. Ginn says isn’t supported by scientific evidence. The World Health Organization recommends 1 meter (3 feet, 3 inches), while Germany and Australia suggest 1.5 meters (just under 5 feet). Sweden recommends that people use “good judgment.” "

“I want this to be an open dialogue,” Mr. Ginn says. “But we shouldn’t have public-health people making economic policy. We need to have the policy makers who people vote for make those determinations.” After all, “we’re a democracy—we’re not China.”

Who knew?

So when you see those red circles on the floor of the grocery store, just remember there is no scientific evidence for that. Not even by the so called "scientists" we're suppose to revere. Could be 3', or 5' or any distance you choose.

Friday, May 15, 2020

Lakeside will be different this year

We own a summer home in a Chautauqua community linked to the Methodists, Lakeside, Ohio, which depends on the owners and visitors to keep it afloat for 3 months of its business season. Owners, of course, pay year around. There are constant appeals for money in any year, usually to rebuild, restore, restart something in the arts, religion, education and recreation areas. Now, it will be just to stay alive. $2.1 million deficit.

"Lakeside is taking this expected loss of revenue very seriously. We reacted swiftly to implement immediate cost reductions. Reductions in staffing and cuts in operating expenses and programming costs for this summer total $1.6 million. We were able to cut another $200,000 from project spending to bring the cost reductions to $1.8 million, but we are still left with a $2.1 million projected deficit ($3.9 million reduction in revenue partially offset by $1.8 million in cost cutting).

"How do we intend to cover the $2.1 million deficit? Lakeside received a $650,000 forgivable loan from the Paycheck Protection Program, part of the Federal government’s stimulus package. Lakeside already had bank lines of credit of $1.1 million that are typically used to manage variations in cash flow. We will use those. Lakeside is supplementing that by acquiring an additional $500,000 bank line of credit. We have enough debt capacity to cover the remaining deficit, although it comes at a future cost of paying back that debt. " (Lakeside newsletter)

We'll be there, and it will be different. Our family has been Lakesiders since 1974, owners since 1988. Many of our family and friends have visited or stayed with us over the years. We will have Phil's service there this summer.

 






Thursday, May 14, 2020

Give me liberty


Stop the insanity

At the beginning (the end of January when the President was called a racist for sounding the alarm about a mysterious virus originating in China), most of us went along with the need to be prudent, which soon moved to the need to avoid our usual places we congregated, then closing the schools, then seeing our businesses close for a few weeks (they originally said until Easter), then the churches, then the orders to wear masks/don't wear masks; then we began to see the light. This wasn't going to stop unless we objected. The cure was becoming worse than the disease.

Then we noticed the push back about opening up was coming from the same people who gave us 3 years 24/7 of investigating and impeaching our president. Yet the statistics and models were all over the place, and many of the experts disagreed. Some never considered removing from the numbers mix the same people who were also at risk for influenza and pneumonia or the people who already had serious health challenges. And if they did, they were ridiculed or blocked. The president's enemies howled even louder if he speculated or commented or disagreed. We have a health system already endangered and weakened by the previous administration's demands to buy a bad product or go to jail. Now we're being told we have to save it by collapsing every other segment of the economy?

Stop the insanity.

Wednesday, May 13, 2020

Trusting the experts

I think Dr. Fauci and Dr. Birx are highly respected experts in their fields, but they are not experts in all fields. The are not mental health professionals, they are not agronomists, they are not bankers, they are not sociologists, educators or restaurant owners. They are not librarians, theologians, mathematicians, economists or plumbers. They are not airplane pilots, auto salesmen, butchers, bakers or candlestick makers. They have a tiny piece of safety and health information, but there are many others to be consulted. Their knowledge may have saved a few thousand lives and a few big hospitals in a selected group of metropolitan areas, but they have also ruined others and are producing and directing a horror movie of deaths and illnesses to be released soon.

How to stay well and build resilience during a pandemic

After the first 2-3 weeks and doing common sense protections, don't listen to the experts on TV reverse everything they told you when you did watch. It's the same media who brought you the impeachment of President Trump 24/7.

Tuesday, May 12, 2020

Trials beginning for the Covid19 vaccine

“Ordinarily, “Safety of a vaccine must be confirmed by extensive animal work, followed by the inoculation of dozens of humans, then escalating to thousands,” write vaccine consultant Stanley Plotkin and New York University bioethicist Arthur Caplan in an upcoming article in the journal Vaccine. “That process normally takes months to years, during which SARS-2 will infect and possibly kill millions. Acceleration of that standard process is necessary.” They go on to propose human challenge trials as a way of achieving that acceleration.”

https://www.the-scientist.com/news-opinion/support-for-vaccine-challenge-trials-gains-momentum-67525?

I wonder how many will volunteer just so researchers won't have to use animals in the safer trials? Usually, new drugs are developed very slowly and painfully costing millions of dollars for each trial, then released slowly, declared safe, and then sometimes pulled when millions begin using them and they are discovered not to be safe after all. Be a guinea pig if you wish, but I'll wait for some real evidence.

But then I didn't actually approve of how some older drugs were developed either (when I found out)--like birth control. First the products were tested on Africans who didn't realize the danger, and then when not too many died, or became ill or were made sterile, they were further tested on poor and welfare mothers in western countries who appreciated the perks that went with the testing and didn't know the dangers. And then when it was decided prudent and profitable, ordinary middle class women got "the pill." Nutritional supplements for children were done the same way--tested on African babies and when declared safe, were available in Europe. Antiretroviral medications (which failed) were also tested on African women first to lower incidents of HIV/AIDs. And of course, the ever popular "bed nets" to use in Africa after the backlash withdrawal of DDT killed or crippled millions of Africans after malaria had virtually been eliminated before Rachel Carson and the environmentalist movement.

My sister was a guinea pig in NIH experiments in the 1950s with her BVS service.  I remember going there to visit her. My aunt Muriel even late in her life thought perhaps Carol’s shortened life (57) and poor health was due to something she’d received during those trials. I’m guessing she heard that from my parents, since they knew more of the details.

Wash your hands with soap to kill both bacteria and viruses

Toilet paper seems to have returned to Marc's, and now chicken is disappearing. Bleach seems to be in short supply. Still don't see a lot of antiseptic hand cleaner. I wonder how many people who buy that know that soap and water is still the best for both viruses and bacteria.  Maybe some of those Happy Talk commercials on what fun it is to stay locked down could be replaced by videos of proper hand washing?

https://www.fda.gov/consumers/consumer-updates/antibacterial-soap-you-can-skip-it-use-plain-soap-and-water

http://sitn.hms.harvard.edu/flash/2017/say-goodbye-antibacterial-soaps-fda-banning-household-item/

Monday, May 11, 2020

The value of a job

“There is no job that’s better than another job,” he continued. “It might pay better, it might have better benefits, it might look better on a resume and on paper, but actually it’s not better. Every job is worthwhile and valuable, and if we have a kind of a rethinking about that because of what’s happened to me, that would be great, but no one should feel sorry for me, either from a positive or a negative perspective. I’ve had a great life, I’ve had a great career, and I’ve had a career that most actors would die for.”

Spoken by Geoffrey Owens who played Bill Cosby's son-in-law in an interview with ABC's Robin Roberts, after he was "job-shamed" on social media for working at Trader Joe's between acting jobs. It was just a little blip in 2018 which I ran across today. Let people go back to work and stop shaming them, stop bullying them if they see dignity in work

The Arbery shooting in Georgia

The Arbery shooting in Georgia reflects the need for Democrats to make everything about race. Nothing is ever a love affair gone sour, an innocent inquiry mistaken as a robbery or bad blood between co-workers. At least if the victim is black and the perp is white. Out of 100 black men who are murdered, 94 are victims of a black man (or occasionally a black woman). Four will be brought down by white, Hispanic or Asian men (or occasionally a woman). And statistics are similar for whites and Hispanics. For every 100 white or Hispanic men who are murdered, 83 will be victims of a same race assault. In most cases both the victim and assailant will be young.

The female mayor of Atlanta with no evidence whatsoever, called it a lynching, and blamed President Trump! I pity the family of the black man who never get justice because he was killed by another black man, and no one paid any attention. Certainly not the mayor and the major news media.

After 1994, violent crime dropped drastically--maybe 50%. Thousands of black lives have been saved. Experts don't agree on the reason. Because of the bias in research based on political and religious views, it’s difficult to tease out the details, but one thing is for certain, the media distorts reports of violent crime. It can sell more papers, or get more TV revenue or encourage more clicks on line for profit if it involves a black man being killed by a white man, and particularly if police are involved.

https://www.motherjones.com/politics/2020/05/this-was-a-lynching-atlanta-mayor-ahmaud-arbery-shooting/

Honor your father and your mother

"The fourth Commandment: “Honor your father and your mother, that your days may be long in the land which the Lord your God gives you.” That’s not just a call to filial piety; it’s a call to patriotism as well." . . .

Did you know that only 18% of colleges require a class in American history? And then we wonder why social media, academe, business and entertainment world are either battle grounds or kindergarten recess. People my age fear dementia--we've seen it ravage family members and friends, taking them from us and leaving behind a stranger. But what about national dementia--we've stolen history from our young people by offering nothing but grievances and pretending smugly only the current generation is smart and moral--they will have no memory to steal.

https://www.thecatholicthing.org/2020/05/11/patriotism-in-the-fourth-commandment/?

Scandal around Obama’s role grows, but will it be reported

The Flynn “justice” scandal and the Trump impeachment fiasco. It all points to the top.  Based on any past bad news about Obama, the media will run for cover, or not cover the growing scandal clearly laid out in the documents that the Democrats were pulling off the biggest vote theft in their history--the attempt to undo the 2016 election.

https://nypost.com/2019/11/20/when-the-villain-is-obama-not-trump-news-suddenly-becomes-not-worth-reporting/?

I know what happens in libraries, and it's probably the same in news. Librarians don't purposely "ban books" and that whole ALA "Banned books" week/month is just hype to get you into the library (before they were closed by the government). Library collections become liberal because the banning goes on in the back rooms where books are ordered from favorite review sources, which are liberal. It's a massive, circular system--conservative professors don't get promoted or don't get published so the liberal publishers don't pick up their material, which then circulates through smaller, independent publishers. And at the root the banning goes much deeper. Conservatives may decide against a career in academe or anything that influences the culture because the deck is stacked against them. You'll hear about women or minorities being shut out because that fits the liberal agenda of grievance, but what liberal would ever write about discrimination against conservatives! Just doesn't happen. It's "banned."

Much the same in the news. News media don't fabricate fake news, they don't have to--the people who post on FB and Twitter do that for them by reposting memes and fake stories. What the media do is edit out the part of real news they don't like, major in minors, or just choose to not report something. That's why liberals bad mouth Fox News--its coverage of Trump is only 50% negative, so therefore liberals believe it must be fake if it isn't filled with negative, insulting information. Or they point at Hannity or Levin, which are opinion shows (very pro-Trump), not news. Because the MSM like Washington Post or New York Times contain so much opinion in their regular news coverage, liberal readers are confused between factual reporting and biased opinion (all opinion articles have a bias, as they should, even this one). So if the media cover a political or cultural event that is a current topic, then later find out it actually happened under Obama and not Trump, they scramble to quietly pull it, or don't report it at all.

Stand up!

Acts 14:10: Paul called out in a loud voice, "Stand up straight on your feet." He jumped up and began to walk about.

In context, this passage is about Paul and Barnabas fleeing persecution and going to Lystra to share the Good News of Jesus. There's nothing like a healing miracle to get people's attention. There's a lot of detail given in this story--the people spoke Lycaonian and worshipped the Greek gods. They thought, witnessing the miracle, that Barnabas was Zeus and Paul was Hermes. There was a priest of Zeus near by ready to sacrifice some oxen at a temple. Paul used their stunted knowledge about their own religion and the natural world to tell them the Good News.

Do you ever see anything in Scripture that you've never noticed before? I read this as a message to us and the churches in this time of fear and weakness that has crippled us.  Not just stand up, but stand up straight. Not on your knees begging for permission from the government, but stand up on your feet ready for business! Let’s kick butt; we’ve been crippled long enough.

Sunday, May 10, 2020

Jail is too harmful for prisoners, but OK for salon owner

Sharyl Attkisson comments on the case of the hair dresser in Texas arrested and jailed for working:  “I’m old enough to remember when working hard, feeding your family and employing others was aspirational. But in the age of coronavirus and the government’s wisdom, doing so can be made into a serious crime.

How serious?

Apparently more serious than the acts committed by thousands who have been released from prisons and jails because of coronavirus fears — including a man accused of killing a girl in a hit-and-run, thieves, people convicted of assault and sexual crimes, a man who allegedly set his girlfriend’s door on fire and choked her mother, and a prisoner accused of assaulting a homeless services officer.

Jail is considered too harmful to these people; they are considered safe to roam the streets. But Dallas Judge Eric Moyé sentenced salon owner Shelley Luther to a week in jail — where she would be at elevated risk of contracting the coronavirus — because she refused to apologize for being “selfish,” in his words, by operating her salon in violation of a state order. Luther insists it’s not selfish to feed her children and to make sure her employees are not going hungry.”

https://thehill.com/opinion/criminal-justice/496671-do-as-i-say-not-as-i-do-virus-exposes-two-standards-of-justice

A Mother’s Day task?

I thought I heard someone mowing his lawn at 7:30 a.m. on Mother's Day, then I looked out the window (my new desk location), across the creek and through the leaves, and saw someone using a leaf blower to remove debris from his swimming pool cover. Aside from the fact that an outdoor pool in central Ohio is a pretty silly thing anyway, with all this stay at home time, is it really the only day and time the neighbor could find to do this?

Saturday, May 09, 2020

Cancer treatment checklist

I found this at a blog written by a woman who had metastatic breast cancer. Due to HIPAA and Phil's reluctance to ask his family for assistance, we were helpless in helping him battle his disease. He was brave, determined, combative and very angry. He'd already had a stroke (retinal occlusion) and had a number of health problems which he chose to ignore. After his death I found a letter written by a cousin suggesting that he not try going through this alone, to accept help. He disregarded her, too. The mistakes I've seen were compounded by a very small thing yesterday when we received a sympathy card from the doctor he trusted most and told us never to question her advice. His name was wrong in the card! Doctors, too, are helpless if a patient is noncompliant. And he definitely was. But he had amazing faith in her, not withstanding.

Lessons Learned Checklist:

1. Expect mistakes from your health provider;

2. Ask critical questions at every visit. Take a written list of questions in order of priority. If you get home and realize something is not clear, contact your doctor again;

3. Get a friend or family member to serve as your advocate;

4. Communication between doctors is absolutely critical. If a Radiology report indicates possible metastatic disease or something equally alarming make sure you get a definitive diagnosis. Rule out the worst-case scenarios. Make sure the doctors involved have talked;

5. If you aren’t confident about the doctor’s diagnosis, ask your doctor to review your records with colleagues to see what might have been missed;

6. Get a second opinion;

7. Choose doctors who take time and listen. Ask for a copy of the doctor’s notes to ensure your issues are documented properly. This also ensures the doctor heard what you said;

8. Ask specialists to take a “fresh look” at your case;

9. Make use of hospital patient advocate resources without delay.

Friday, May 08, 2020

Democrats target Trump again

While I'm sort of enjoying not listening to the House (Democrat controlled) Daily Drool over investigations of Trump to beef up their campaign funds and pay the investors of the MSM, they are working on the next one. It was all Trump's fault.

Apparently, they haven't looked at CDC national death statistics for all causes, especially flu and pneumonia taking out the elderly, or the number from coronavirus (not published, but it won't make the top 10 unless it's changed to "with" and not "of"). Why not take advantage of a crisis to 1) kill the Trump 2020 campaign and 2) destroy small businesses that employ 99% of us by extending the shut down. They've still got their mega-corporate cronies like Bill Gates and Jeff Bezos who fund their favorite projects. The original shut down was to save the hospitals from being overwhelmed. That didn't happen, but Democrats want to continue with what didn't work.

Number of deaths for leading causes of death (2018) and since many of these conditions are chronic and treatable, these numbers could soar from lack of treatment during the shut down of Spring 2020.

Heart disease: 647,457
Cancer: 599,108
Accidents (unintentional injuries): 169,936
Chronic lower respiratory diseases: 160,201
Stroke (cerebrovascular diseases): 146,383
Alzheimer’s disease: 121,404
Diabetes: 83,564
Influenza and Pneumonia: 55,672
Nephritis, nephrotic syndrome and nephrosis: 50,633
Intentional self-harm (suicide): 47,173

But they want US to forget that most of the Covid19 infections came from the European air travelers who were infected by Europe's traffic from China. European leaders didn't want to be "racist" (or lose a lot of investments) by closing down air travel. But Trump acted swiftly. He closed air travel before the first death in a nursing home in Washington. So we can thank Mayor De Blasio and Governor Cuomo for seeding the rest of the country, because NYC was still "open" in March. "Y'all come and take home a souvenir! Ride our filthy subway!"

Since they are Congressional Democrats, they only know how to run impeachment scams. That's all we've seen of their work since January 2017. And there are plenty of Republicans who will be invited to say insulting things in opinion columns, none of which will have anything to do with the baseless charges. They just don't like him, and fear losing their own base, whether that's in Congress, academe, their business, or their church.

https://www.nytimes.com/2020/05/07/us/new-york-city-coronavirus-outbreak.html

https://www.nydailynews.com/opinion/ny-oped-de-blasio-coronavirus-failures-20200331-fogyfsta4fcl5k27xmf6mob4ti-story.html

Thursday, May 07, 2020

Coverings and bonnets and a new desk

If one of my nieces had asked me, "Who has Grandma's prayer covering," I could have honestly told her, "I don't know, ask your mother." No more. I found it along with many pair of scissors, at least 10 old eye wear, a hand held calculator with no batteries, a 2017 pocket calendar, Museum of Art membership card for 2018, phone # for appliance repair, bags and envelopes of cancelled stamps for donation to an organization that uses them, math compass, rulers 12" and 6", User's guide for my CD clock radio 1999, perhaps 20-30 half used small notebooks, old photos that didn't make the cut for one of our 40+ photo albums, sacks of cards waiting for just the right moment which never comes, decorative magnets purchased as souvenirs of our travels, 20-30 CDs with various updates or unknown information, and an unopened box for a course in Constitution 101. I have several more boxes to go through before the transition to my new desk is finished.  The old Steelcase that I’ve had for over 40 years will go to new home, when pick ups are allowed again. At least 85% of its contents need to leave this house with it.

For those unfamiliar with Anabaptist traditions, a prayer covering is something Christian women wear for communion, or if they are conservative Mennonite or Old order Brethren, they wear them all the time. Mother usually kept a few extras in her desk drawer (neater than mine) in case there were relatives visiting during the Easter season when the twice a year observance took place. The last time I had communion (Brethren Love Feast) in my home church was probably the mid-1990s, so I would have borrowed one. But this one was hers--the tattered envelope is labeled. She died in January 2000.

I found a blog written by a Monica Rice, a 2011 MA graduate of Bethany Theological Seminary, who has studied this tradition in depth. It's not exactly the way I remember things, but it's been over 50 years since I was a member and each locality or congregation sets its own standards. The photo looks like Mom's covering and the one I had. Some are in bonnet form and each style has its own history and tradition. Somewhere packed away I have my great grandmother's black bonnet from the 19th century.

I also own the first yearbook of Bethany because my grandfather was on the Board, but that’s another blog (or I’ve already written one).

http://www.brethrenlifeandthought.org/2012/09/28/what-about-the-prayer-covering/

Wednesday, May 06, 2020

On being a caregiver

It's been 2 weeks since our son Phil died, and I may write more of my reflections (and advice to others) at my blog when they come to me. Let me first say it is a privilege to be with a loved one when he is dying, although it will be the most difficult thing you'll ever do. Phil was Phil from the beginning to the end, and although that could be very frustrating when we wanted him to go a different direction or not cause self-harm, he was also a testament to God's creative power. From the moment of our conception to the moment of our last breath, we are the same person going through stages. Jesus has ennobled our frail human bodies that get sick and die, and from here on Phil has no bounds.

When we got the call from hospice in February we were totally unprepared--we thought Phil would be continuing his chemo and battling his brain tumor. It was an ugly fight, but he was determined to stick with the treatment. The appointments were on the calendar. But with hospice, treatment stops and palliative care begins. Our weekly visit and daily phone calls turned into 24/7 care. Because of HIPAA and Phil's personality, we knew little about his treatment or glioblastoma, only what we'd been able to learn on our own. We didn't live in the same community and knew nothing about his financial situation. The national situation almost eliminated our familiar support network. And we were so wrong about so many things.

Imagine (if you are about my age) you know how to drive a car--you've been driving so long it's almost second nature. But it's becoming difficult and you no longer do the free ways and stay with the streets you know. You vaguely remember how to drive a stick shift because you learned that as a teen (or in my case, your husband has one). So, these two nice ladies you've never seen before pay you a visit, show you a 1950s era pick up truck, put you behind the wheel, and say, "Don't worry, we'll teach you what you need to know." Meanwhile you're headed for the entrance ramp to drive through the center of Atlanta at rush hour, or Chicago through 50 construction zones at night. In a pick up truck you don't remember how to drive. At every stop light, a different person climbs in the cab and reroutes you--no map, no GPS. Sometimes at night something breaks down and it takes hours to get help. Fortunately, there are some hitch hikers to pick up along the way who really do help and explain things.

If you've been or will be a caregiver, your mileage will vary; spouses have rights and relationships with the medical system, financial institutions and social networks that parents and adult children don't have. The same people who are there to help may also say, by law we can't advise you, or that's not my area of expertise.

If you are healthy now and have no worries, pause and reflect. Two days before Phil was diagnosed we'd had a birthday lunch at the Chef-o-Nette in our old neighborhood and we knew nothing about what would be coming on October 1.