Wednesday, February 08, 2023

If I get dementia, by Anonymous

This was recently posted on Facebook. It's always a sobering reminder. It seems every month or so I see someone who is acting a little differently.  So perhaps it's time for understanding. . .

“If I get dementia, I want my friends and family to embrace my reality. If I think my spouse is still alive, or if I think we’re visiting my parents for dinner, let me believe those things. I’ll be much happier for it.
If I get dementia, don’t argue with me about what is true for me versus what is true for you.
If I get dementia, and I am not sure who you are, do not take it personally. My timeline is confusing to me.
If I get dementia, and can no longer use utensils, do not start feeding me. Instead, switch me to a finger-food diet, and see if I can still feed myself.
If I get dementia, and I am sad or anxious, hold my hand and listen. Do not tell me that my feelings are unfounded.
If I get dementia, I don’t want to be treated like a child. Talk to me like the adult that I am.
If I get dementia, I still want to enjoy the things that I’ve always enjoyed. Help me find a way to exercise, read, and visit with friends.
If I get dementia, ask me to tell you a story from my past.
If I get dementia, and I become agitated, take the time to figure out what is bothering me.
If I get dementia, treat me the way that you would want to be treated.
If I get dementia, make sure that there are plenty of snacks for me in the house. Even now if I don’t eat I get angry, and if I have dementia, I may have trouble explaining what I need.
If I get dementia, don’t talk about me as if I’m not in the room.
If I get dementia, don’t feel guilty if you cannot care for me 24 hours a day, 7 days a week. It’s not your fault, and you’ve done your best. Find someone who can help you, or choose a great new place for me to live.
If I get dementia, and I live in a dementia care community, please visit me often.
If I get dementia, don’t act frustrated if I mix up names, events, or places. Take a deep breath. It’s not my fault.
If I get dementia, make sure I always have my favorite music playing within earshot.
If I get dementia, and I like to pick up items and carry them around, help me return those items to their original places.
If I get dementia, don’t exclude me from parties and family gatherings.
If I get dementia, know that I still like receiving hugs or handshakes.
If I get dementia, remember that I am still the person you know and love... “

Copy and paste in Honor of someone you know or knew who has dementia/alzheimer's.....

1 comment:

Norma said...

via e-mail

My mom had a form of dementia, initially it affected her short term memory...After many years, it robbed her of things she enjoyed, particularly during this past year. She loved to sing, and lucky me, I was with her once when she could go to music therapy...she loved singing and the therapist was able to get my mom to sing. :)

We were blessed that she knew all of us, family and friends were always greeted when we entered her room. She knew us.

Dementia affects people differently, and Norma, your post provides very good information. During these past three months, my mom could not feed herself, she didn't like the food, and it was difficult for her to swallow...the progression and reality of this awful disease eventually took her life. As we all believe, she went to Jesus on Feb. 2nd. I would describe her as one of God's faithful servant.